Infantile spasms (IS) is rare, affecting fewer than 2500 patients each year, most between birth and the first year of life; however, it's a catastrophic condition for which there is a need to identify, diagnose, and treat early.4 The condition has both cryptogenic (idiopathic) and symptomatic etiologies6,7:
Parents and caregivers are usually the first to recognize the physical signs of IS. However, they may not have the words or terminology to describe their observations and the symptoms may appear subtle and similar to colic, gastroesophageal reflux disease (GERD), or normal baby movements, so IS may be misdiagnosed.4,6
When describing their baby's behavior, caregivers might use words like8:
If you or your office staff hear these descriptions, consider IS and schedule a visit. In the meantime, if you or a baby's parent or caregiver suspects IS, ask the parent to videotape the suspicious movements over the next day or 2, or before they come to see you. Spasms occur most frequently in the morning or upon waking from a nap.7 They may last from less than few seconds to up to 10 seconds, and in clusters of 2 to 100 at a time.6
Infantile spasms can be subtle, but you can save precious time and treat fast if you recognize the signs5-7:
Videos about diagnosing IS and the treatment of IS with Acthar.
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Helping you help children with IS get Acthar A.S.A.P.
H.P. Acthar® Gel (repository corticotropin injection) is indicated as monotherapy for the treatment of infantile spasms in infants and children under 2 years of age.Contraindications